Oct 21, 2024
National Organization for Rare Disorders (NORD) Launches the Living Rare Study - First to Measure Full Scope of Rare Disease Challenges
Oct 01, 2024
New California Law Establishes the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC)
Sep 30, 2024
National Organization for Rare Disorders (NORD) Announces $85,000 in Grant Funding for Amyloidosis and Levy-Yeboa Syndrome
Jul 23, 2024
NORD Report Highlights Benefit of Pediatric Drug Development Incentive Program for Children Living with Rare Diseases
May 01, 2024
National Organization for Rare Disorders (NORD) Names Pamela K. Gavin as CEO
Apr 22, 2024
National Organization for Rare Disorders (NORD) Announces 2024 Rare Impact Award Honorees, Emmy Award-Winning Journalist, Peter Alexander to Host
Apr 16, 2024
Mississippi Enacts Critical Reform to Improve Access to Care for the 1 in 10 State Residents Living with a Rare Disease
Feb 23, 2021
NORD Announces This Year's Heroes of Rare Disease: The 2021 Rare Impact Award Honorees
Jan 28, 2021
How Will You Show Your Stripes in 30 Days?
Oct 21, 2020
Rare Disease Cures Accelerator-Data and Analytics Platform First Year Milestones Highlighted at Virtual Workshop
Oct 09, 2020
NORD Highlights New Era of Innovation and Public Health Awareness in Virtual 2020 Rare Diseases and Orphan Products Breakthrough Summit
Sep 24, 2020
Major Groups Representing Millions of Patients Release Telehealth Principles
Sep 10, 2020
2020 NORD Summit to Feature Leading Experts in Public Policy, Patient Advocacy, Rare Disease Research and Regulatory Science
May 21, 2020
NORD Supports Rare Disease Nonprofits Impacted by COVID-19 with New Rapid Response Leadership Series
May 19, 2020
NORD Awards Eleven New Grants in Eight Disease States for Rare Disease Research
May 12, 2020
In Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief Program
Apr 15, 2020
NORD Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19
Mar 30, 2020
NORD/ EURORDIS-Rare Diseases Europe Joint Statement on COVID-19 and Orphan Drug Legislation
Feb 11, 2020
NORD Introduces This Year's Rare Disease-Fighting Super Group: The 2020 Rare Impact Award Honorees!
Jan 30, 2020
NORD Report Shows Key Policy Improvements Were Achieved by States in 2019 But More Progress Is Needed to Support Americans Living with Rare Diseases