Rare Disease Day

Mar 30, 2020

NORD/ EURORDIS-Rare Diseases Europe Joint Statement on COVID-19 and Orphan Drug Legislation

Feb 27, 2020

IFFGD Raises Awareness for Rare Digestive Diseases on Rare Disease Day 2020

Feb 27, 2020

Chiesi Global Rare Diseases Recognizes Rare Disease Day and Highlights Plans to Expand Focus on Patient Advocacy in 2020

Feb 26, 2020

Stripes for Parker Event to Benefit Those With Rare Genetic Disorders

Jan 30, 2020

NORD Report Shows Key Policy Improvements Were Achieved by States in 2019 But More Progress Is Needed to Support Americans Living with Rare Diseases

Jan 16, 2020

NORD Issues a Rare Decree: Show Your Stripes(TM) for Rare Disease Day®

Jun 28, 2018

BioMarin Announces First Recipients of RARE Scholars Scholarship Program

Feb 28, 2018

Sobi Launches Enhanced Corporate Sustainability Initiative

Jan 16, 2018

The National Organization for Rare Disorders (NORD) Launches 7,000 Mile Rare Movement Challenging Americans To Chart 7,000 Miles During Month Of February

Jan 03, 2018

32 Rare Disease Charities Will Board the Historic LeRoy King Carousel at First-Ever RARE Carousel of Possible Dreams